15th day of protest in front of the Government Administration. The group of protesting parents of children with achondroplasia demands that Prime Minister sign a legal act, that would outline the timeframe for the government to import the drug “Vosoritide” for treating the condition.
“We are tense, devastated. The process will take a while if they can’t give us a specific date. We cannot stop protesting until there is a signature, a guarantee that our children will be healthy, and they’ll start Vosoritide medication on September 1st”, - said one of the parents.
Earlier today Health Minister Zurab Azarashvili urged the group of protesting parents of children with achondroplasia to continue the discussion over the introduction of the treatment methods “at the working table, in a constructive format”.