Parents of children with achondroplasia are demanding the importation and financing of specific medicine for the treatment of the disease in Georgia. They discussed this issue at the meeting with the Minister of Health.
At the meeting, Zurab Azarashvili learned about the parents’ needs and presented them with information obtained from international organizations regarding the drug “Vosoritide.
“It was noted that due to the existence of scarce data regarding the medicine, the developed countries of the world are careful about this issue in order to guarantee the patient’s safety as much as possible. Therefore, at this stage, treatment with the mentioned drug is not financed from the state budget in any country of the world. The authorization of the medicine by the US Food and Drug Agency and the European Medicines Agency refers to the right to enter and sell the medicine in the countries and does not automatically mean the funding of the medicine from the budget”, - explained the minister.
As it was underlined, the decision to finance medicines from the state budget is not made unilaterally, and the issue is discussed by specialists, doctors and experts based on joint reconciliation.
Zurab Azarashvili once again confirmed the agency’s readiness that the state will finance the diagnosis and treatment of children with other concomitant diseases both in Georgia and abroad.